LWBC Stakeholder Briefing Documents

LWBC Stakeholder Briefing Documents

Trust Stakeholder Discussion Reports

The Trust Stakeholder Discussion Reports transform National Cancer Quality of Life Survey data into practical intelligence for Living With and Beyond Cancer (LWBC), Personalised Care and survivorship services. Rather than presenting complex dashboards or statistical outputs, the reports identify the patient-reported issues most frequently experienced within each Trust, compare them with national experience, and translate the findings into clear discussion points for clinicians, managers and service leaders.

Designed specifically for busy NHS stakeholders, the reports explain what the findings mean, highlight potential opportunities for improvement, identify areas of relative strength, and provide structured discussion questions to support local review and service development. The objective is not performance management or ranking, but helping organisations understand where cancer survivors may need additional support and where improvement efforts are most likely to benefit patients.

Cancer Alliance Living With & Beyond Cancer Intelligence Summary

The Cancer Alliance Living With & Beyond Cancer Intelligence Summary transforms National Cancer Quality of Life Survey data into a population-level view of survivorship needs across a Cancer Alliance. By combining patient-reported outcomes with intelligence relating to frailty, late effects, personalised care, pain, anxiety, independence and wider survivorship support needs, the report helps identify where the greatest burden is likely to exist and where targeted interventions may deliver the greatest benefit.

Designed for Cancer Alliances, Integrated Care Systems and Strategic cancer programmes, the report moves beyond traditional quality-of-life reporting to provide a structured understanding of the challenges faced by people living with and beyond cancer. 

The outputs help organisations prioritise investment, target support services, inform survivorship strategies and support evidence-based discussions regarding Living With & Beyond Cancer, Personalised Care, Prevention and Late Effects programmes.

62-Day Cancer Waiting Times Performance Report

The 62-Day Cancer Waiting Times Performance Report transforms national cancer waiting time data into a practical performance intelligence tool for NHS providers, Cancer Alliances and Integrated Care Systems.

The report identifies where individual cancer pathways are achieving, approaching or falling below the national 62-day standard, highlighting variation by tumour type and referral route. By presenting performance in a simple Red, Amber and Green format, the report enables clinical, operational and management teams to quickly identify areas requiring attention and prioritise improvement efforts.

By bringing together all tumour pathways into a single structured report, stakeholders can rapidly understand where performance is strongest, where challenges persist and where targeted interventions may help improve cancer waiting times and patient experience.

Stage at Diagnosis National Positioning Report 

The Stage at Diagnosis National Positioning Report transforms national cancer registration data into practical intelligence, that helps NHS organisations understand how effectively cancers are being identified at an early stage. By comparing Cancer Alliances, Integrated Care Boards and NHS Regions against England benchmarks, the report highlights where patients are more likely to be diagnosed at Stage 1 or Stage 2, and where opportunities may exist to improve earlier diagnosis.

Early diagnosis remains one of the most important determinants of cancer outcomes, patient experience and healthcare costs. The report identifies tumour-specific areas where diagnosis is occurring later than expected, helping organisations focus attention on awareness, screening, referral pathways, diagnostic capacity and service redesign.

In short, the report helps organisations understand where cancers are being found early, where they are being found late, and where targeted action may have the greatest potential to improve outcomes for patients.

SIA AI Driven Text Analytics & Care Opinion

Drawing on over 20 years of Care Opinion patient feedback and other patient experience datasets, the LWBC Patient Feedback Analytics Programme applies AI-driven text analytics to convert thousands of patient stories into actionable intelligence, helping NHS organisations identify unmet needs, improve personalised care, and better support people living with and beyond cancer.

Cancer Services Patient Experience Stakeholder Review

This paper translates Care Opinion narratives into practical actions to improve safety, timeliness and compassion across our cancer pathways. It focuses on what matters most to patients today and where targeted effort over the next 90 days will deliver visible, measurable benefits. It is based on 114,751 comments from patient stories related to cancer services, analysed using our AI pipeline for themes, sentiment and significance. 

EQ5D Plus Survey Questionnaire Example 

https://www.surveymonkey.com/r/XRTHV6N

This questionnaire is widely used to measure quality of life outcomes. It can be used in any patient group and the general population. It has five items asking about mobility, self-care, usual-activities (such as work, study, housework, family or leisure activities), pain and discomfort, and anxiety and depression. Each question has a range of five statements; you select the best one for you. For example, the mobility item ranges from ‘I have no problems walking about’ through to ‘I am unable to walk about’. In addition, our version includes the What Works, What needs Improving & Anything else questions. These are analysed and turned into a discussion document by our AI Pipeline. 

EORTC QLQ-C30 Survey Questionnaire Example

https://www.surveymonkey.com/r/DS6S2PD

This questionnaire is a cancer specific questionnaire, suitable for use with all cancers. It has 30 items about functional issues, common symptoms or side effects, and overall health and quality of life. From this, 15 items are used to produce summary scores for different functional categories: physical, social, emotional, role, such as work and leisure, and cognitive function. - The questionnaire also includes 13 items about some of the more common symptoms or side effects, such as pain and fatigue. Each question asks if the symptom has been experienced in the past week and has a range of four answers, from 'not at all’ to 'very much’. Patients then select the best one for them personally.

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